Helpful Resources

These resources will help you find more information and connect with others living with Parkinson's disease. Many of these sites will direct you to the latest Parkinson's disease news and research, as well as opportunities to get involved with local chapters and organizations.

The American Parkinson's Disease Association (APDA)

National Parkinson Foundation, Inc.

Parkinson's Disease Foundation

National Institute of Neurological Disorders and Stroke

Michael J. Fox Foundation for Parkinson's Research

Parkinson's Action Network

Parkinson Study Group (PSG)

Parkinson's Disease Research, Education and Clinical Centers (PADRECC)

WE MOVE - Worldwide Education and Awareness for Movement Disorders

European Parkinson's Disease Association (EPDA)

Parkinson Society Canada

World Parkinson Disease Association

National Family Caregivers Association

ClinicalTrials.gov

PDTrials.org

 

The American Parkinson's Disease Association (APDA)
The American Parkinson Disease Association, Inc. was founded in 1961 to 'ease the burden and find a cure' for Parkinson's disease.

The APDA site offers basic information about Parkinson's disease, as well as links to local chapters and Information Referral Centers.

[back to the top]

National Parkinson Foundation, Inc.
"Our Mission: to find the cause of and the cure for Parkinson disease through research; to improve the quality of life for both persons with Parkinson and their caregivers; and to educate persons with Parkinson, their caregivers, healthcare professionals, and the general public about Parkinson disease and its treatment."

The NPF site includes Parkinson's facts, links to local chapters, and information about research studies.

If you would like to get information from a doctor online, the National Parkinson Foundation offers an "Ask the Doctor" Forum.

Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a national non-profit organization devoted to education, advocacy, and the funding of research.

The PDF site offers basic information about Parkinson's disease, as well as bulletin boards for Parkinson's Community News and Science Bulletins.

[back to the top]

National Institute of Neurological Disorders and Stroke
The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

The NINDS site features the latest neurological research news, as well as fact sheets and information on a wide range of neurological disorders, including Parkinson's disease.

Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.

This site contains general information about Parkinson's disease, research information, and links to news and events.

[back to the top]

Parkinson's Action Network
PAN advocates for increased and accelerated investment of public resources to ease the burden and bring a cure to the million Americans who suffer from Parkinson's.

The PAN site features basic information about Parkinson's disease, scientific updates, and information about the PAN Grassroots Advocacy plan.

Parkinson Study Group (PSG)
The Parkinson Study Group (PSG) is a non-profit, cooperative group of Parkinson's disease experts from medical centers in the United States and Canada who are dedicated to improving treatment for persons affected by Parkinson's disease.

The PSG site features basic information on Parkinson's disease, as well as information on what a clinical trial is and a listing of current Parkinson's disease trials.

[back to the top]

Parkinson's Disease Research, Education and Clinical Centers (PADRECC)
Established by the U.S. Department of Veterans Affairs, each PADRECC conducts research covering basic biomedicine, rehabilitation, health services delivery, and clinical trials.

This site explains the general program and lists contact information for each of the current PADRECCs.

WE MOVE - Worldwide Education and Awareness for Movement Disorders
The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the Web.

The WE MOVE site features detailed information about Parkinson's disease, as well as numerous other movement disorders and related conditions.

[back to the top]

European Parkinson's Disease Association
The EPDA aims to: promote international understanding of Parkinson's disease; enable patients and carers to draw on best caring practice worldwide; access the latest medical and surgical advice; make informed choices to achieve the best quality of life possible.

The EPDA site features a Parkinson's disease fact sheet, links to worldwide members, and a media center with news and information links.

Parkinson Society Canada
Parkinson Society Canada is a not for profit, national charitable organization. Finding the cause and cure for Parkinson's disease remains our chief mission.

This site contains general information on Parkinson's disease, research news, and information for caregivers.

[back to the top]

World Parkinson Disease Association
The WPDA seeks many goals, including: 1) To improve the quality of life of Parkinson's patients worldwide; [and] 2) To broaden public awareness and contribute to the development and sharing of greater knowledge and information about Parkinson's disease.

The WPDA site contains articles for patients and caregivers, as well as the latest Parkinson's disease research news.

National Family Caregivers Association
The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers' needs.

The NFCA site has a wealth of information for caregivers - including news, tips, statistics, and support - all delivered with a message of self-advocacy and empowerment.

[back to the top]

ClinicalTrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.

For a current list of clinical trials related to Parkinson's disease, visit ClinicalTrials.gov and type "Parkinson's" in the search box.

PDtrials.org
PDtrials.org provides up-to-date information on Parkinson's disease clinical trials currently enrolling participants in the U.S. by symptom and location, as well as the latest news and views on what's happening in the world of Parkinson's trials.

[back to the top]

06282345/061107

;